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Message from the Director:

 Picture of Dyan Quesada
October 3, 2006
From personal experience and accounts from patients, it seems that physicians are busier than ever. In addition, many of us have more that one physician addressing our healthcare needs (e.g. internist, rheumatologist, cardiologist, etc.) To make things even more challenging, some live here seasonally, and utilize physicians in different geographical areas. These circumstances make it difficult for healthcare providers to collaborate with each other and provide the patient with the most optimal care. It is imperative that we as individuals play leading roles in our own care. After discussing this with many of my patients, I am offering some guidelines on how to do this:
  1. Keep a journal. At a minimum, include your name and contact information, the name and contact information of all of your physicians, a list of your current medications and dosages, any allergies (food, medications, latex, etc.,) and your past medical history (illnesses and surgeries.) Other information that is extremely helpful is a log of all visits with your physicians and other healthcare providers. Include a summary of their discussions with you, and a description of any complaints that you are currently experiencing (e.g. location of pain and specifically when you get it.) Also, try to get copies of any tests, reports from MRI’s, and blood work.

  2. Educate yourself on any condition you have, procedures you might consider, and any medications you take. The web is an excellent resource, as are pharmacists, your local library, and literature that health care providers may distribute in their office.

Take this information with you to every medical appointment. You will find that it will save time when you fill out paperwork, and allow you to give an accurate account when you are speaking with your physician. Empower yourself and ask questions about suggested treatments (risks, benefits, side effects, etc.) Realize that your team of physicians may vary on treatment recommendations for you. It is ultimately up to you to decide what is best.

Dyan Quesada

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Autism - The Basics
By: Missy Poirier, OTR/L

Autism is one of the four major developmental disabilities. It occurs in one to two of every 1,000 births. It is a brain disorder, present from birth, which affects the way the brain uses information. Essentially it means that hearing, sight and other senses are not properly understood. This results in severe problems of social relationships, communication, and behavior.

The characteristics of autism differ in severity from person to person, but usually consist of the following:

♦ Severe delays in language development
    ● Slow to develop
    ● If developed, they will use a formal and monotone voice
    ● Usually includes peculiar speech patterns

♦ Severe delays in understanding social relationships
    ● Often avoids eye contact
    ● Seems to “tune out” the world around them

♦ Uneven patterns of the intellectual functioning
    ● May demonstrate a high level in particular skills in relation to their overall
       functioning. Examples of this are drawing, music, math and memorizing
       relative/non-relative facts.
    ● The majority of autistic people have varying degrees of mental retardation
        with only twenty percent having average or above average intelligence.

♦ Marked restriction of activity and interests
    ● May perform repetitive body movements, such as hand flickering, twisting,
       spinning, or rocking. They may also display repetition in their daily routine.
       Changes in their schedule cause them to be distressed.

The cause of autism is still unknown. Some research suggests a problem affecting parts of the brain that process language and information coming from the senses. There may be some imbalance of certain chemicals in the brain, and possibly, involvement of genetic factors involved.

Researchers around the world are testing thousands of theories through mediums such as genetic screening, videotaping young children, and functional MRI & EEG testing, which can uncover dysfunction in the autistic brain. And with every study, they are developing diagnostic tests that will help people assess for the disorder at increasingly younger ages. Their ultimate goal is to find an early biomarker.

It is important for parents of autistic children to focus less on the difficulties their child has and more on who they are, and what they can achieve.

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